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I Got COVID 9 Months Ago and Still Have Symptoms chronic illness chronic pain covid disabled life neurosurgery rare disease Dec 16, 2020

If you haven’t read my Newsweek article yet, please read and share! I am hoping to spread awareness on Long-Haul COVID.

https://www.newsweek.com/this-what-its-like-covid-long-hauler-1551431

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Today marks the one year anniversary of my neurosurgery. chronic illness chronic pain disabled life neurosurgery rare disease Oct 07, 2020

Originally I had planned to publish a compilation of my experiences with tethered cord syndrome, rare disease diagnosis, neurosurgery, and CSF leak, in time for my one year anniversary. My body and mind are currently not up for this seemingly monumental task, so I will be brief.

I have mixed...

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I haven't seen my friends in 6 months due to COVID...but that's my normal. chronic illness chronic pain covid disabled life friendship mental health neurosurgery pain awareness month pandemic rare disease Sep 01, 2020

I was reflecting last night on how I have not seen any friends in person over the past 6 months due to COVID. I chuckled a bit at this thought because, truth be told, quarantine life isn’t much different than my PreCOVID life. Only now, my absence on social outings is just seen as more...

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